Peer Nation News

PEER NATION AT FIVE

PEER NATION AT FIVE

Peer Nation is a mental health service user led and managed organization initiated by participants from the seven-year Brain Gain Peer Support Work Programme, that was managed by the Butabika East London Link in Uganda, from 2011 to 2018. The organization was incorporated into legal status on 12th March 2019 as a charitable company limited by guarantee, making five years today. Our membership is comprised of seventy-two members who include mental health service users that have gone on to train as peer support workers, carers and some mental health professionals.

Our;

Vision: Creating a dignified society with mental health for all.

Mission: To attain sustainable mental health recovery by enhancing better living standards for all through knowledge gain, partnership, advocacy and independent living.

Goal: To provide psycho – social support to mental health survivors, those who care for them and their communities.

Shortly after our incorporation as Peer Nation, we submitted our Peer Support Work concept to Open Society Initiative for Eastern Africa (OSIEA) in 2019 and luckily enough we got the grant. It was our first grant titled ‘Institutional Strengthening and outreach peer support project’, which ran from January 2020 – July 2021.  With this funding we were able to do a lot of outreach peer support work with health centers in areas such as Kitetika, Nansana, Kitebi and Nkonkonjeru. This helped drive our mission of increasing mental health awareness.  With these funds we were also able to cover some of our overheads such as staff salaries and rent for our office premises. We also capitalised on procuring office furniture and equipment.  The highlight of this project was being able to register Peer Nation as a national indigenous non-governmental organisation (NGO) in Uganda with a five years’ operating permit on the 24th day of February 2021.

Shortly thereafter, we were honored to get a new grant from the UK Department of Health and Social Care (UK DHSC) managed by Tropical Health and Education Trust (THET).  This grant ran from July 2021 – August 2022.  With this grant we were able to carry out activities that included a training of trainers (TOT) for ten peer support workers.  Some of them, alongside our UK consultant, went on to train 20 clinical staff from health facilities in the project areas to serve as peer support worker supervisors.  The identified project areas included Arua and Mbarara Regional referral hospitals, as well as Nakivale and Yinga Imvepi refugee settlement areas.  Ten short films were also produced to complement the didactic peer support worker training.  Seventy-two (72) mental health service users in the project regions were trained to become peer support workers to carry out work in the aforementioned areas.  Additionally, we were able to translate our Mental Health Peer Support work training manual from English to five languages that include Arabic, Kiswahili, Kinyrwanda, Runyankole – Rukiga and Lugbara.  These training manuals, together with the Butabika Recovery Manual, are now hosted on our Peer Nation website (https://www.peernation.org/manuals/) ready for the general public to download at will and at zero cost.

Between October 2022 – September 2023 we were able to get another Institutional Strengthening Grant from OSIEA.  We utilized this by engaging in community mental health awareness raising through the Kampala Mental Health Film Club, whereby we showcased different films and documentaries every last Tuesday of the month at the National Theatre. We were however challenged with continuing the films due to the need to have them classified by Uganda Media Council as a requirement from Uganda Communication Commission (UCC).  By the time this happened, in November 2023, we had showcased eleven (11) films.  Furthermore, with this grant we were able to further capitalise by procuring more office equipment and provide capacity building training for our members.  As a highlight for this particular project, Peer Nation was awarded charity status with income tax exemption certificate from the Uganda Revenue Authority, something that was long waited for.

The main challenge we are faced with is sustaining the funding to continue the work further.  Along the way we have lost some of our dear members who have gone to meet the lord namely: Rashid Male, Hamza Diambo, Isaac Dhatemwa, Doreen Byaruhanga and recently Grace Tebandeke.  May their souls rest in eternal peace and let perpetual light shine upon them.

As we move forward here are some of our forecasts for the next five years: We would like to have some form of physical presence in all the four regions of Uganda namely; Northern, Eastern, Central and Western region.  We would like to increase our membership significantly by having a national appeal and character. We thank all the funders that have moved with us along this journey, and the respective individual contributions from the various friends that have come to our aid.  We would still wish and love to move with you further afield. That said however, we would still need more funders to come on board to enable Peer Nation to take this work to the next level.  We hope and are looking forward to resuming our Mental Health Film Club at the National Theatre in Kampala, once all the necessary modalities are in place.  We thank all of you who have supported our film club in anyway and in particular we would like in a special way to thank those of you who spared time to come along and attend, making the evenings memorable by voicing your contributions at the discussions after the film screening.

With these few remarks, allow us to say happy anniversary to Peer Nation at 5!!

Peer Nation Secretariat.

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KAMPALA MENTAL HEALTH FILM CLUB PRESENTS… ‘HEAL’

HEAL

A documentary film that takes us on a scientific and spiritual journey where we discover that by changing our perceptions, the human body can heal itself…

(No certification)

Film followed by discussion

FREE admission, All welcome

Tuesday 30th May 2023 at 6.30 pm

The Green Room, The National Theatre, Ugandan National Cultural Centre

Contacts: 07027 77641 or 0773063473

A collaboration between

Peer Nation, Film Club Uganda, Uganda National Cultural Centre and the Butabika- East London Link

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KAMPALA MENTAL HEALTH FILM CLUB PRESENTS ‘THE GAMBLER’

THE GAMBLER

Axel Freed is a literature professor. He has the gambling vice.

When he has lost all of his money, he borrows from his girlfriend, then his mother, and finally some bad guys that chase him.

Despite all of this, he cannot stop gambling…

(Certification 18: Mild profanity, mild sex, mild violence and gore, mild alcohol and drug use, some frightening and intense scenes)

Film followed by discussion

FREE admission, All welcome

Tuesday 2nd May 2023 at 6.30 pm

The Green Room, The National Theatre, Ugandan National Cultural Centre

Contacts: 07027 77641 or 0773063473

A collaboration between

Peer Nation, Film Club Uganda, Uganda National Cultural Centre and the Butabika- East London Link

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Inspiring Mental Health Recovery StoriesPeer Nation News

Monthly profile of An inspirational Peer – Teddy’s story

Teddy’s story

Looking back, Teddy believes her illness started when she was young. After a case of cerebral malaria, she was taken to medical hospitals, received treatment and seemed to improve. Neither her nor her guardians knew anything about mental illness.

However, when she was in her second year at University, she went to the village for family annual meetings. There she found that all her family were against her, they said she was going astray and criticised her behaviour. As a punishment, all of her hair was cut off. She returned to Kampala feeling so bad, she stayed in bed all day and wouldn’t eat. She cried and felt like she wanted to kill herself. She was supposed to be doing examinations, but she was weak and couldn’t read. She was going to miss them.

Teddy lived with her Auntie in Kampala, who took her to the University clinic. They recognised a mental health challenge and referred her to Butabika Hospital. At Butabika, a psychiatrist asked Teddy about her life story and diagnosed her with Bipolar disorder. She was experiencing a depressive episode and needed treatment.

The psychiatrist also explained to Teddy and her Auntie that Bipolar disorder may run in the family. It can be generational. However, Teddy’s aunt took this badly. She felt criticised and blamed, as if the problem was coming from home. Looking back, Teddy thinks this was a big misunderstanding. Unfortunately, it had repercussions later.

Teddy was admitted to Butabika that day. It was so unsettling to be in a new environment, but she recalls her cousin brother who visited every day, bringing food and new clothes. She says, “he was my consolation”. She stayed in hospital for a month, missing her University examinations. She was prescribed ECT treatment. This is where you are put to sleep and an electrical current is passed through your head to induce a seizure. It is a treatment for severe depression, which can be of benefit to some people. Teddy remembers being put on a bed, and a nurse saying, “Is it ready?”. She didn’t feel anything and hasn’t experienced any side effects. She was told it helps you to get new thoughts.

After a month she was discharged with medication, which she took daily. She was able to return to University and complete her course. However, in the run up to her Uncle’s wedding, which was to be a large event for the whole family, Teddy became overly excited. She was not sleeping and was talking a lot. It was abnormal and increasing on a daily basis. She was brought back to Butabika and admitted with a manic relapse.

After things settled down, she was discharged again. As she was taking lithium, she needed to go for regular blood checks. Everything was becoming expensive, and her Auntie was fed up. It didn’t help that she had felt criticised by the doctor at Butabika – thinking “the problem is at home” – although perhaps this was just a misunderstanding. Teddy was sent away. After living in the house from P5, she felt rejected.

She moved in with another Auntie who said, “you are not sick, you are making yourself sick, this medication is so expensive, it will disturb you, you will not produce”. Lacking family support, Teddy defaulted on her medication. Soon, she was readmitted to Butabika. She felt depressed and was suicidal. She did not feel loved.

At this stage in her life, Teddy decided to join a Missionary group. She was taken to Kenya. They did not know about her mental health challenges, and Teddy convinced herself she was not sick. She didn’t take medication and over the next three years the excitements and depressions would come. At times she would be taken to hospital. Nobody recognised the signs. After three years, her contract terminated, and she returned to Uganda. She felt depressed but did not want to go to Butabika – the stigma was too great to bear. Her brother found her in such a low state at her father’s house that he took her to Bosa Mental Health Unit at Mulago Hospital, crying, “what has happened to my sister?”

This time, on discharge from hospital, Teddy was referred to HeartSounds, a peer support organisation for mental health challenges in Uganda. When she went, she found lively people who were mental health users. Before, Teddy didn’t know anyone else experiencing mental health challenges. Now, she had peers to guide her and counsel her. It helped her so much. She was also chosen to receive training as a peer support worker. She became so active, “I used to say I’m useless, now I saw that I’m productive”. Since then, she has not suffered any more relapses.

Teddy now has a partner who accepts her and supports her, and two children. She is running a successful book making business and takes part in activities for Peer Nation, so she can use her lived experience to help others.

By sharing her story, Teddy has demonstrated that medication for mental health challenges does not affect fertility. She has two healthy children. Also, Teddy is able to provide for her family through her peer support work and business. Finally, she asks for family members and carers of people with mental health challenges to love and support them. Looking back on her first admission at Butabika, she says “if I hadn’t been supported by this cousin brother of mine, life would have been different”.

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